The Alexion Charitable Foundation Inc

121 SEAPORT BOULEVARD - BOSTON - MA 02210, Massachusetts

Latest Filing: 2024

Total Assets: $8.97M

Total Giving: $2.02M

Grants: 26

Median Grant: $25,000

THE ALEXION CHARITABLE FOUNDATION INC, a medium-sized 990pf foundation in Massachusetts, provides grants ranging from $9K to $400K annually.

2024 Summary

$8.97M

Total Assets

$2.02M

Funding Awarded

Grants Given

$25,000

Median Grant

$444,259

Largest Grant

$8,960

Smallest Grant

2024 Recipients

Recipient	Award	Location	Purpose
Give An Hour	$444,259	Chicago, ILLINOIS	The Grant Will Support The Project Titled Care For Caregivers: Mental Health & Emotional Wellbeing Care For Rare Caregivers Program For The Purpose In Capturing The Most Effective Parts Of Our Learning From The Py22 Grant And Continue To Broaden And Deepen Our Sustainable Ability To Address Unmet And Disconnected Mental Health And Emotional Wellbeing (Mh & Ew) Needs Of Those In The Rare Disease Caregiver Community, Regardless Of Where They Are In The Continuum Of Their Caregiving Journey.
Angel Flight Of New England	$250,000	Andover, MASSACHUSETTS	Ongoing Grant In Support Of Angel Flight Ne's Mission/Flight Coordination: Healing Journeys For Rare Diseases Program Will Allow Them To Continue Their Support Of Patient And Outreach Activities, Enabling More Patients And Families To Receive Support In Accessing Aerial Transportation For Medical Treatments Not Available In Their Geographical Areas. Participating In Expanded Marketing To Various Rare/Ultra Rare Groups To Partner And Educate Them On Angel Flight Ne's Free Air Transportation Services Is Pivotal To Continued Growth.
Serious Fun Children	$250,000	Boston, MASSACHUSETTS	The Grant Will Support The Project Titled Mental Health Support Grant Program For The Following Purpose Of Providing Life Changing Camps And Programs Serving Children Living With Serious Illnesses And Their Families Around The World, Totally Free Of Charge. Seriousfun Programming And Facilities Are Skillfully Adapted To Fit The Different Cultures And Medical Conditions Of Campers. Every Attempt Is Made To Be Inclusive And Accessible. The Medical Expertise At Camps Enables Them To Support Children With More Than 100 Different Types Of Conditions Including Cancer, Blood Disorders, Heart Diseases, Immunological Disorders, Neurologic Conditions, Genetic Conditions, And Metabolic Disorders.
Global Genes	$165,000	Plymouth, MASSACHUSETTS	Grant Will Support The Project Titled Rare Mental Health Impact Grants Program Which Provides An Opportunity For Foundation Leaders To Apply For Grants To Assist In Creating Programs, Educational Tools/Materials, And Support Networks To Address Unmet Mental Health And Social Support Needs Of Their Community. The Goal Of The Impact Grants Program Is To Equip Patient Communities To Expand Availability And Effectiveness Of Tools And Capabilities That Address Critical Mental Health Needs. A Secondary Goal Is To Utilize, Promote And Make Available The Outputs From The Grant Funded Projects To The Larger Rare Community.
Ronald Macdonald House Charities	$150,000	Norwalk, CONNECTICUT	Continue To Support The Project Titled, Ronald Mcdonald House Charities Global Health And Wellness Initiative, With The Purpose Of Funding Innovation And Capacity Grants To Four (4) Local Rmhc Chapters In France, Italy, Australia, And The United Kingdom In Order To Continue To Support The Mental Health Needs Of Families And Children, Via The Rmhc's Global Health And Wellness Initiative. This Initiative Will Help Families And Caregivers Cope With Their Childs Illness Or Disease And Address The Psychosocial And Physical Well Being Of Both Rmhc Families, And The Staff Charged With Caring For Them.
Boston Children's Hospital	$125,000	Boston, MASSACHUSETTS	The Grant Will Support The Project Titled Rainbow Program Which Is Boston Children's Hospital's Patient Clinic For 1,250 Medically Complex And Rare Disease Diagnosed Children. This Project Includes Four Efforts To Address Vulnerable Transfer Moments For Medically Complex Patients, Including: 1. The Transition Into Clinic As A New Patient, 2. The Transition Out Of The Hospital After An Admission, 3. The Transition Back To The School System Annually Or After A Change In Medical Status Necessitates New Orders, And 4. The Transition Out Of Our Clinic To Adult Primary Care As A Young Adult.
Willow Foundation	$115,000	n/a	Continue To Support The Project Titled, Special Days Program For Rare Disease Youth Across The Uk, For The Purpose Of Covering The Additional Costs Associated With Providing Personalized Services To Rare Disease Patients That Require More Input From Medical Advisers. 15% Of Willow Foundation Beneficiaries Are Rare Disease Patients. This Grant Should Provide Services To 150 Uk Based Rare Disease Patients.
Patient Airlift Services (Pals)	$100,000	Chicago, ILLINOIS	The Grant Will Support The Pals Mission Of Helping People With Life Threatening Diseases With Access To Aerial Transportation For Care Rather Than Traveling Hundreds Of Miles Via Car Or Bus.
Imd Guest House	$74,000	New Haven, CONNECTICUT	Continue To Support The Project Titled, Pediatric Rare Disease Care Community, For The Purpose Of Providing Convenient And Affordable Accommodations To Patients/Families Receiving Hospital Based Care In Chicago. Chicago Is A Global Hub For Rare Disease Specialist Care, And Imd Guest House Supports In Providing Accommodation Assistance (Significantly Reduced Price Or Free Based On Income Level) Specifically For The Rare Pediatric Community Seeking Treatment In Chicago Who Cannot Afford The Costs Of Affiliated With Extended Stays Near The Hospital. Guest House Provides Comfortable, Affordable, Temporary Lodging For Patients And Their Families Who Must Travel, From Across The Us And Internationally, To Chicago For Medical Treatment. Imd Guest House Anticipates Serving 30 Rare Pediatric Disease Patients/Families (30 Patients And 45 Parents/Family Members) Over 1,000 Cumulative Nights This Year.
Jett Foundation	$50,000	New Haven, CONNECTICUT	Grant Will Support The Project Titled Camp Promise, Which Is A Free, Week Long Camp And Year Round Program For Kids, Teens, And Young Adults With Neuromuscular Disorders. In 2022 Camp Promise Returned To In Person Events At Five Locations Across The Country With One Additional Virtual Option. Camp Promise Provides A Barrier Free, Week Long, Overnight Camp For Kids, Teens, And Adults Living With Neuromuscular Disorders Regardless Of Age, Capability, Or Ability To Pay.
United Spinal Association	$33,000	n/a	The Grant Will Be Used To Support United Spinal Associations Ongoing Community Support Resource Center (Csrc) Operations And Its Resulting Impact On The Wheelchair User Disability Community, Especially Those Affected By Neurological Diseases And Disorders. The Csrc Program Is Designed To Offer "High Touch" Personalized Responses And Specialized Virtual Resources Meeting The Unique Needs Of Wheelchair Users Living With Paralysis, Mobility Impairments, Spinal Cord Injury (Sci), And Rare Diseases To Reach Their Highest Potential, Remain Independent, Healthy, And Active Members Of The Community And Workforce.
Fundacion Para El Fomento (Fdi)	$25,000	Aliso Viejo, CALIFORNIA	The Grant Will Support The Project Titled, Disability Awareness Program In Schools, Which Has The Purpose Of Different Mechanisms To Achieve The Integration And Normalization Of People With Disabilities. This Training Project Attends To This Need By Providing Coverage Through Inclusive Days, Circuits With Different Forms Of Adapted Sport, Orientation And Awareness Talks Using Ict As The Main Means Of Communication, Training Different Educational Centers In The Community Of Madrid.
Discovery Museums	$25,000	Athens, GEORGIA	The Grant Will Support The Project Titled, Especially For Me Museum Memberships. Efm Programs Are Tailored To The Unique Needs Of Children On The Autism Spectrum, Who Are Deaf Or Hard Of Hearing, And Who Are Blind/Have Low Vision. They Are Held During Both Low Visitation Daytime Hours And When The Museum Is Closed To The Public And Are Limited In Size To Maintain The Quality Of The Experience. Events Are Free To All Who Attend, Including Caregivers And Siblings. The Central Goals For Efm Events Are To Provide Inclusive Indoor And Outdoor Learning Experiences To Children With Disabilities And To Give Families (Caregivers And Siblings) The Chance To Connect With Others Facing Similar Challenges.
Tech Goes Home	$25,000	Kew Gardens, NEW YORK	The Grant Will Support The Project Titled, Digital Inclusion Programs, Which Has The Purpose Of Helping Families/Individuals With Digital Access. The Programs Provide 15 Hours Of Digital Skills Training, Allowing Participants Earn New Chromebook Or Ipad And A Year Long Internet Connection If Needed. With The Tools And Skills, Gained Through The Program, Graduates Are Prepared To Leverage Technology In Whatever Way Will Benefit Them Most. Tgh's Digital Literacy Training Focuses On Fundamental Skills Needed To Complete Homework Assignments, Apply For Jobs, Communicate With Friends And Family, Utilize Vital Community Resources, Access Telehealth, And Use The Internet Safely And Responsibly.
Citizen Schools	$20,000	Acton, MASSACHUSETTS	The Grant Will Support The Project Titled, Providing Educational Opportunities For Underserved Students In Ma And Ca Which Has The Purpose Of Supporting Educators To Provide Hands On Learning Opportunities In Science And Mathematics Classrooms, Provide Opportunities For Students To Gain A New Perspective On Their Career Possibilities And Build The Skills Needed To Persevere And Thrive Via Workshops. These Workshops Are Inspired By The Citizen Schools Catalyst Professional Development Program, Which Is Designed To Support Middle School Educators In Fostering A Collaborative Learning Environment That Is Asset Based, Provides Tiered Support, And Access To Mentor Relationships Critical To Student Well Being And Success.
Save The Children	$20,000	Dorchester, MASSACHUSETTS	Grant Will Support The Project Titled, Early Steps To School Success Program, Which Has The Purposes To Work In Partnership With Schools And Community Based Organizations To Provide Education Services To Children From Birth To Age Five, Support Their Parents And Caregivers, As Well As Implement Ongoing Training To Community Educators. This Program Is A Low Cost, Targeted Approach To Enhancing School Readiness For Children Living In Some Of The Most Impoverished Parts Of The Country.
St Marys Center For Women & Children	$20,000	Boston, MASSACHUSETTS	The Grant Will Support The Project Titled, Trauma Informed Behavioral Health And Case Management Services For Families Experiencing Homelessness Which Has The Following Purpose Staffing Includes A Variety Of Healthcare Partners In The Boston Area And Focuses On Mental And Behavioral Health As Well As Care Coordination. Initial Meetings And Treatment Plans Throughout Their Time At Smc Help Residents Participate In Both Individual And Group Weekly Therapy Sessions To Develop Greater Economic And Emotional Stability While On Their Journey To Permanent Housing. The Ultimate Goal For This Program Is To Decrease The Length Of Stay At Smc For Residents. By Partnering With Universities To Offer Robust Clinical Internships, Smc Is Also Excited To Create A Pipeline Of Behavioral Health Clinicians And Help Combat The Current 6 9 Month Average Waitlist For Behavioral Health Services In Boston.
Leadership Education And Athletics In Partnership Inc (Leap)	$16,000	Natick, MASSACHUSETTS	The Grant Will Support The Project Titled, Expanding Leaps Aquatics Program Which Provides Year Round Swimming Lessons To Over 350 Young People Ages 7 15 Annually With The Goal Of Making Swimming An Accessible Skill To All New Haven Youth. Besides Seeking To Promote Water Safety, Leap's Aquatics Program Also Seeks To Boost The Confidence And Comfort Of Youth From Historically Marginalized Backgrounds In The Water. As Part Of The Overall Mission To Empower Youth And Develop Their Leadership, Leap Hires And Trains A Team Of 10 20 Lifeguards And Swim Instructors, Many Of Whom Learned To Swim At Leap. All Instructors And Lifeguards Engage In Intensive Training To Provide High Quality Swim Lessons And Be Prepared For Emergency Situations That May Arise. Leap Pays For Necessary Certifications And Trainings For Youth Without Them, Thus Making Youth Not Previously Certified Still Eligible To Seek Employment Opportunities.
Peer Health Exchange Inc	$16,000	Fairfield, CONNECTICUT	The Grant Will Support The Project Titled, Youth Health Education And Digital Health Solutions, Which Has The Purpose Of Serving Young People Via School Based Workshops That Align With National Health Education Standards, The Cdc's Characteristics Of Effective Health Education Curricula, And Common Core Standards. Phes Relatable Near Peer Delivery Of Identity Forward Health Education Supports A Sense Of Belonging For Bipoc, Disabled, And Lgbtqia+ Young People, Who Are Often "Othered And Underrepresented In Traditional Health Programming. Phes Digital Health Solutions Reach Young People Without A School Intermediary, Allowing For Scaled Impact Beyond Classroom Walls. Phe Works In Partnership With Young People Through Paid Leadership Opportunities Like Our Regional Youth Advisory Boards, Who Provide Key Feedback On The Program And The Youth Design Group, Who Vet And Approve All Content On Phes Health App, Selfsea.
Big Sister Association	$15,000	Boston, MASSACHUSETTS	The Grant Will Support The Project Titled, One To One Mentoring Which Has The Purpose Of Mentoring Relationships Of 12 Little Sisters In Greater Boston With The Goal Of Keeping Matches Together For A Minimum Of One Year. The Grant Will Help Support Direct Costs, Including Personnel Costs, Matching Activities, Professional Support, Programming And Activities, And Other Direct Program Costs, Such As The Fees Associated With Criminal And Background Checks Of Big Sister Matches, Volunteer Recruitment Event Costs, And Activity Expenses. Bsagb's Overall Goal To Ensure Girls Develop A Positive Sense Of Self; Build Collaborative, Critical Thinking, And Other Social Emotional Skills; Learn To Navigate Challenges; Identify Future Aspirations; And Access Resources And Support To Achieve Post Secondary Success. This Year, Bsagb's Goal Is To Serve Over 1,000 Girls In One To One Mentoring, Which Includes Making 459 New Matches For Girls Waiting To Be Matched With A Big Sister.
... and 6 more recipients.

$15,000

$919,960

State

Total

MA

Massachusetts

$919,960
IL

Illinois

$544,259
CT

Connecticut

$290,000
CA

California

$40,000
NY

New York

$40,000
GA

Georgia

$25,000
MD

Maryland

$15,000

Contacts

Name	Phone	Title
MICHAEL ELLOIAN	4752303530	TREASURER & DIRECTOR
MICHAEL ELLOIAN		Signing Officer

Historical Financials

Year	Total Assets	Total Giving	Grants	Median Grant	Max Grant	Min Grant
2024	$8,973,352	$2,022,219	26	$25,000	$444,259	$8,960
2023	$11,099,744	$643,998	18	$10,500	$200,000	$5,000
2022	$11,836,785	$2,089,063	33	$16,000	$334,910	$7,000
2021	$11,997,971	$2,165,000	21	$25,000	$600,000	$10,000